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Housebound for the Holidays 

November 30, 2022

I love the holidays for many reasons. They give me an excuse to eat as much of just about anything as I want. The holidays also involve simultaneous gift giving and gift receiving, which is always a good thing. They even give me a feeling of timelessness, as if the magical season will last forever. […]

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Are You Afraid of The October Slide?

October 27, 2022

It’s that time of year again—time for carving pumpkins, picking Halloween costumes, and eating lots and lots of candy. But it’s also time for something else, something unique to the chronic illness and disability communities, something far more sinister and frightening than your neighborhood haunted house.  I’m talking about the October Slide, a spooky phenomenon […]

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Disability Benefits (And Other Things That Keep me up at Night)

September 26, 2022

My nightmare began with a phone call.  The IHSS caseworker was calling to do an intake interview after I moved from Tuolumne County to Solano County earlier this year. I wrote about the experience back in July, but I left out some of the details because the situation was still in progress, and I feared […]

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Do You Even Sleep?

August 29, 2022

It’s eight in the morning and I haven’t slept yet. In one corner of my room, I can hear the low rattle of my desktop mini fridge. In another corner, I can see the piercing green light from my air purifier. These, among other things, do not help me sleep.  After more than a full […]

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The Process of Proving I am Sick

July 25, 2022

The last few months have been rough. If you follow me on social media, then you know that I have been going through a brutal intake interview for In-Home Supportive Services, which provides me with caregiving hours. You may also know that the intake interview did not go well.  I’m in the process of appealing […]

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The Publicist Problem 

June 17, 2022

In the summer of 2019, I was gearing up for my book launch the following January. After years of trying to get my memoir, When Force Meets Fate, published by a big publisher, I decided to take a hybrid approach and publish the book through Inkshares, an indie publisher.  After selling more than 750 pre-orders, […]

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Every Stage of Illness is Difficult 

May 30, 2022

In the more than a decade that I’ve been sick, I’ve experienced just about every level of my illness. At various times, I’ve been near death. At other times, I’ve been well enough to function almost like a healthy person. I’ve also been stuck in the middle, as I am now, wondering what will happen […]

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On The Move

April 5, 2022

There was a brief moment, as I lay in the back of my mom’s van, when it seemed like moving to a new house was going to be easy. Or if not easy, then it seemed like the move might at least be manageable. But soon after, things became increasingly unmanageable.  The process of moving […]

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Lyme Bullseye Rash and Lyme Titers

March 1, 2022

It all starts with a Lyme bullseye rash. Well, not always. In my case, and many others, Lyme disease began more mysteriously. For me, there was no Lyme bullseye rash or even a detectable tick bite. (The last tick bite I had was ten years before I was diagnosed.) It was almost as if my […]

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9 Disability Products and Aids That Have Helped Me

February 14, 2022

A lot of people ask me about the products and aids that I currently use (or have used in the past) to improve my quality of life. And while I’m sure there are at least a few disability products catalogs out there, I thought I would use this post to cover some of the products […]

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