My Posts

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Lyme Bullseye Rash and Lyme Titers

March 1, 2022

It all starts with a Lyme bullseye rash. Well, not always. In my case, and many others, Lyme disease began more mysteriously. For me, there was no Lyme bullseye rash or even a detectable tick bite. (The last tick bite I had was ten years before I was diagnosed.) It was almost as if my […]

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9 Disability Products and Aids That Have Helped Me

February 14, 2022

A lot of people ask me about the products and aids that I currently use (or have used in the past) to improve my quality of life. And while I’m sure there are at least a few disability products catalogs out there, I thought I would use this post to cover some of the products […]

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A New Disability Website For a New Year

January 31, 2022

For years, I’ve been wanting to update my chronic illness and disability website. Partly because I’ve always envied people with websites that have fancy graphics and animations, and partly because, well, you and all the other lovely people who read my blog deserve a more modern experience. Until recently, I thought I could create (and […]

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Ending on a Good Note . . . Sort of

December 30, 2021

There’s nothing quite like ending on a good note, especially when the thing you are ending is, well, sort of a crappy year. This year has undoubtedly been a rough one, mostly thanks to COVID. But, at the same time, it has been one of the best years for my recovery from myalgic encephalomyelitis (chronic […]

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All The Little Victories

November 29, 2021

There was a time when I was really sick, too sick to touch my feet, and I wished I had a device for putting on socks (affiliate link). Until recently, I didn’t even know that such a thing existed. It would have made my life easier and, well, warmer. (If you have a chronic illness […]

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October Slide Part 2

October 27, 2021

Several years ago I wrote a blog post about the October Slide. At the time I didn’t know much about it and was sort of educating myself as much as I was trying to start a discussion and raise awareness. Not much has changed since then. I still wonder about this weird phenomenon where people […]

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I Went For a Drive

September 20, 2021

Until recently, I hadn’t been in a car for at least five years. The last time, I was so severely sick that a crew of paramedics had to put me on a gurney and wheel me into the back of an ambulance under the cover of darkness because I was so sensitive to light. Then […]

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Up In Smoke

August 23, 2021

The last time I went outside, I wasn’t sure if I could get back in. Wild fire safety was at the front of my mind as the smoke in the air was 500 on the AQI meter (literally the highest it goes). It burned my lungs and throat. I was dizzy and disoriented, weak and […]

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Back to Normal (But Not Really)

July 29, 2021

Things are getting back to normal. But not really. A stadium filled with fans. A restaurant packed with people. A store swarmed by shoppers. Until recently, these things were mostly nonexistent during the pandemic. But now that people are getting vaccinated, places are opening up and people are venturing out in public again. Except not […]

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My First Shower in Six Years

June 29, 2021

When I became bedridden six years ago, bathing in bed was among the many challenges I faced. I didn’t have the option of using a shower chair with arms or even a shower chair with wheels (though now I love these things). Getting (and staying) clean when you can’t get out of bed is incredibly […]

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