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Do You Even Sleep?

August 29, 2022

It’s eight in the morning and I haven’t slept yet. In one corner of my room, I can hear the low rattle of my desktop mini fridge. In another corner, I can see the piercing green light from my air purifier. These, among other things, do not help me sleep.  After more than a full […]

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The Process of Proving I am Sick

July 25, 2022

The last few months have been rough. If you follow me on social media, then you know that I have been going through a brutal intake interview for In-Home Supportive Services, which provides me with caregiving hours. You may also know that the intake interview did not go well.  I’m in the process of appealing […]

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The Publicist Problem 

June 17, 2022

In the summer of 2019, I was gearing up for my book launch the following January. After years of trying to get my memoir, When Force Meets Fate, published by a big publisher, I decided to take a hybrid approach and publish the book through Inkshares, an indie publisher.  After selling more than 750 pre-orders, […]

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Every Stage of Illness is Difficult 

May 30, 2022

In the more than a decade that I’ve been sick, I’ve experienced just about every level of my illness. At various times, I’ve been near death. At other times, I’ve been well enough to function almost like a healthy person. I’ve also been stuck in the middle, as I am now, wondering what will happen […]

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On The Move

April 5, 2022

There was a brief moment, as I lay in the back of my mom’s van, when it seemed like moving to a new house was going to be easy. Or if not easy, then it seemed like the move might at least be manageable. But soon after, things became increasingly unmanageable.  The process of moving […]

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Lyme Bullseye Rash and Lyme Titers

March 1, 2022

It all starts with a Lyme bullseye rash. Well, not always. In my case, and many others, Lyme disease began more mysteriously. For me, there was no Lyme bullseye rash or even a detectable tick bite. (The last tick bite I had was ten years before I was diagnosed.) It was almost as if my […]

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9 Disability Products and Aids That Have Helped Me

February 14, 2022

A lot of people ask me about the products and aids that I currently use (or have used in the past) to improve my quality of life. And while I’m sure there are at least a few disability products catalogs out there, I thought I would use this post to cover some of the products […]

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A New Disability Website For a New Year

January 31, 2022

For years, I’ve been wanting to update my chronic illness and disability website. Partly because I’ve always envied people with websites that have fancy graphics and animations, and partly because, well, you and all the other lovely people who read my blog deserve a more modern experience. Until recently, I thought I could create (and […]

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Ending on a Good Note . . . Sort of

December 30, 2021

There’s nothing quite like ending on a good note, especially when the thing you are ending is, well, sort of a crappy year. This year has undoubtedly been a rough one, mostly thanks to COVID. But, at the same time, it has been one of the best years for my recovery from myalgic encephalomyelitis (chronic […]

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All The Little Victories

November 29, 2021

There was a time when I was really sick, too sick to touch my feet, and I wished I had a device for putting on socks (affiliate link). Until recently, I didn’t even know that such a thing existed. It would have made my life easier and, well, warmer. (If you have a chronic illness […]

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