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When a Relationship Goes Viral

May 31, 2021

The last time I saw Shannon, she couldn’t hear my voice. We had recently started what some might call “chronic illness dating.” My case of myalgic encephalomyelitis — a multisystem, post-viral illness that Dr. Anthony Fauci has compared to “long haul” COVID-19 — made it impossible for me to speak audibly as I struggled to […]

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I Wrote 90,000 Words on my Smartphone. And I Wasn’t Texting.

April 29, 2021

I wrote a book on my smartphone. It took me the better part of a decade, but I was able to type out all 90000 words of my memoir, When Force Meets Fate, on a tiny 4.7 inch iPhone screen. Doing 90000 of anything is a lot, but writing 90000 in words on such a […]

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I Just Walked For The First Time in Five Years

March 25, 2021

Tears are gushing out of my eyes, down my cheeks, dampening my shirt. These tears are a mix of joy and sadness. Joy for having just walked for the first time in half a decade. Sadness for having had to live through those five years. I’ve been sick since 2010, but a few years into […]

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Chronic Illness Burnout is Real

February 27, 2021

If you’re at all like me, then you’ve probably wondered if chronic illness burnout is a thing. Well, I’m here to tell you that it absolutely is a thing. The fact that you are even wondering about it means it is indeed a thing. Chronic Illness Burnout vs Medical Burnout Some people call it chronic […]

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My Book is Officially Published!

January 26, 2021

My book can’t mean everything to everybody, but it can mean everything to me. And now it does.

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Almost Walking

December 28, 2020

It’s been a rough year. I think we can all agree on that, so I thought I’d share some good news—my health has been improving lately. The other day I got out of bed and stood up three times in the span of a few hours, the most I’ve done in my walking rehabilitation in […]

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The Battle Against Bitterness And Anger

November 23, 2020

It’s hard not to be consumed by bitterness and anger. In the macro sense, it’s hard for me because, well, my life hasn’t turned out the way I imagined it would. I’m 32 and haven’t walked in more than five years, I’ve been through intense physical and emotional trauma, and because of my illness, I […]

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The Art of (Not) Accepting And Dealing With Unsolicited Advice

October 26, 2020

For me, it all comes down to the simple truth that if I don’t take unsolicited advice seriously, I won’t get upset that random strangers with no credentials or medical training think they know what’s best for my health.

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Life Without an IV

September 23, 2020

It’s hard to say exactly why I’ve been able to sustain my recovery without IV fluids.

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Advocacy and Acrimony in the ME/CFS Community

August 14, 2020

I’ve never disagreed with anyone on the fact that our illness needs more research funding and more treatments. These basic needs will never be disagreed upon within the community, and it is especially important to remind ourselves of that when things get heated.

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