My Posts

Jamisons post image

Up In Smoke

August 23, 2021

The last time I went outside, I wasn’t sure if I could get back in. Wild fire safety was at the front of my mind as the smoke in the air was 500 on the AQI meter (literally the highest it goes). It burned my lungs and throat. I was dizzy and disoriented, weak and […]

Read More

Back to Normal (But Not Really)

July 29, 2021

Things are getting back to normal. But not really. A stadium filled with fans. A restaurant packed with people. A store swarmed by shoppers. Until recently, these things were mostly nonexistent during the pandemic. But now that people are getting vaccinated, places are opening up and people are venturing out in public again. Except not […]

Read More

My First Shower in Six Years

June 29, 2021

When I became bedridden six years ago, bathing in bed was among the many challenges I faced. I didn’t have the option of using a shower chair with arms or even a shower chair with wheels (though now I love these things). Getting (and staying) clean when you can’t get out of bed is incredibly […]

Read More

When a Relationship Goes Viral

May 31, 2021

The last time I saw Shannon, she couldn’t hear my voice. We had recently started what some might call “chronic illness dating.” My case of myalgic encephalomyelitis — a multisystem, post-viral illness that Dr. Anthony Fauci has compared to “long haul” COVID-19 — made it impossible for me to speak audibly as I struggled to […]

Read More

I Wrote 90,000 Words on my Smartphone. And I Wasn’t Texting.

April 29, 2021

I wrote a book on my smartphone. It took me the better part of a decade, but I was able to type out all 90000 words of my memoir, When Force Meets Fate, on a tiny 4.7 inch iPhone screen. Doing 90000 of anything is a lot, but writing 90000 in words on such a […]

Read More

I Just Walked For The First Time in Five Years

March 25, 2021

Tears are gushing out of my eyes, down my cheeks, dampening my shirt. These tears are a mix of joy and sadness. Joy for having just walked for the first time in half a decade. Sadness for having had to live through those five years. I’ve been sick since 2010, but a few years into […]

Read More

Chronic Illness Burnout is Real

February 27, 2021

If you’re at all like me, then you’ve probably wondered if chronic illness burnout is a thing. Well, I’m here to tell you that it absolutely is a thing. The fact that you are even wondering about it means it is indeed a thing. Chronic Illness Burnout vs Medical Burnout Some people call it chronic […]

Read More

My Book is Officially Published!

January 26, 2021

My book can’t mean everything to everybody, but it can mean everything to me. And now it does.

Read More

Almost Walking

December 28, 2020

It’s been a rough year. I think we can all agree on that, so I thought I’d share some good news—my health has been improving lately. The other day I got out of bed and stood up three times in the span of a few hours, the most I’ve done in my walking rehabilitation in […]

Read More

The Battle Against Bitterness And Anger

November 23, 2020

It’s hard not to be consumed by bitterness and anger. In the macro sense, it’s hard for me because, well, my life hasn’t turned out the way I imagined it would. I’m 32 and haven’t walked in more than five years, I’ve been through intense physical and emotional trauma, and because of my illness, I […]

Read More

Follow My Blog

Enter your email address to follow this blog and receive notifications of new posts by email.
Something went wrong. Please check your entries and try again.
Scroll to Top