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A Veiled Attack on Disability Rights

February 27, 2020

My first job was working the front desk at a gym for minimum wage, long before disability rights were on my mind. I scanned member ID cards, re-racked weights, and cleaned the entire gym — wiping up people’s saliva from the sinks and their sweat off the treadmills, sanitizing the toilets and showers, and picking […]

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Talking Without Speaking and Dreams of Old Friends

January 27, 2020

The need to speak my mind, and the heartache of not being able to, has only made the moment more palpable, more intense and full of emotion. But no amount of emotion is going to change my circumstances. No matter how hard I try, I can’t speak the words I want to say.

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My New Memoir Title: When Force Meets Fate

December 30, 2019

Last week I officially kicked off the campaign to publish my memoir, When Force Meets Fate. Originally I planned to call it Not Like The Whiskey, but I decided that was too obscure and not many people would get the significance. So I changed the memoir title and now we have When Force Meets Fate. It […]

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In an Emergency, Disabled People Are on Their Own

November 18, 2019

Each fall, for the last few years, I’ve lived on edge, hoping a major wildfire doesn’t strike where I live and force me to choose between the lesser of two evils–stay and risk dying in my home or evacuate and risk making myself sicker and getting injured.

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What It’s Like Working With a Chronic Illness

October 30, 2019

I regret that it took a life-changing illness, and losing some of my privilege, for me to truly empathize with the struggles of less fortunate people. I wish I had come to this realization sooner, when I had more health and energy to help other people.

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Breaking The Mold: What Mold is Toxic?

September 16, 2019

It was both a relief and a concern to find the source of the mold. The relief was knowing where it was coming from and the concern was: How the hell do I get rid of it?

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Living With an Illness: A New Kind of Normal

August 26, 2019

When chronic illness becomes a new kind of normal, it also becomes a cruel existence, one in which pain is a constant torture and exhaustion is as frequent as breathing.

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Why I STILL Take My Health For Granted

July 22, 2019

Telling myself to not take my health for granted has always been a mental game I’ve played, an affirmation, perhaps even a mantra that I’ve repeated to make myself feel better about the fact that scary stuff can happen to anybody, at any time.

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I Went Outside. Sort of.

June 17, 2019

I could see all kinds of things that I had missed when I was stuck in my bed. I could feel the breeze swirling around me; I could see hummingbirds buzzing around a tree branch above the roof. I didn’t realize it until later, but it was the first time I had been outside in two years.

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My New York Times Essay is on The Modern Love Podcast

May 2, 2019

It seemed like something that could easily sound inauthentic or fake, the thought of which made me cringe, but in the end he not only did justice to my writing, he managed to accurately convey the struggle of me trying to speak.

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