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The Time I Bought a $2,000 Left Handed Coffee Mug

November 24, 2018

It was a bit demoralizing to inflict such a price on my body for a tiny bit of normalcy — a few minutes of conversation. But there is something truly magical about making a plan, carrying it out, and the outcome proving to be very close to how you envisioned it.

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Weight Weight … Don’t Tell me … I’m Fat?

October 21, 2018

I used to love my body. I still love my body. I love the amazing things it can do despite being plagued by illness. I just don’t love the way it looks. But that’s okay with me.

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Disability Rights: Why Voting Matters to Disabled People

October 10, 2018

With the midterm elections less than a month away, I want to encourage everyone to vote, regardless of your political affiliations. At the very least it’s the best way to ensure bills, like HR 620 or another bill that impacts your life, are handled properly.

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The Aftermath of The Afflicted TV Series

September 7, 2018

I shudder to think about someone else with ME/CFS or Lyme being portrayed worse than me and, in turn, being used to marginalize a group of sick people. That’s just not right.

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Netflix and Hill: The True Story Behind “Afflicted”

August 20, 2018

You can’t dupe a person’s family into saying he’s a hypochondriac and expect him to just be happy that the film is “raising awareness.”

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Going Antiviral: My Antiviral Medication List

July 30, 2018

I feel like I should be thankful for every moment that I’m not too miserable to concentrate on my own thoughts. And I am! I’m incredibly grateful, but that mindfulness is hard to sustain when things don’t get better.

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Don’t Do It For The Gram

June 21, 2018

A few years ago, when I was still on my feet walking the streets, I saw someone stop in the middle of the road and take a selfie. I remember giving a sardonic smile, shaking my head, and waiting for the sound of tires screeching on asphalt. Clearly, I wouldn’t have done anything “for the […]

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My Modern Love Essay is in The New York Times

May 26, 2018

One evening a couple weeks ago I woke up from a nap and groggily checked my phone, then my email. Sitting in my inbox was a response to one of my Modern Love submissions, a message from Daniel Jones, editor of the Modern Love column at The New York Times. Even if you haven’t heard his […]

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A Lesson I Learned From my Mother

May 13, 2018

Mothers, especially single ones, are the epitome of strength. My mother is no exception. She raised me and my sister under difficult circumstances and though I was unaware of it until recently, my mom’s tribulations as a single woman and mother influenced my outlook on being an adult. From my perspective, my mom had always […]

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This is Why Exercise Can’t Cure Illness

May 7, 2018

I realized, “Why the hell am I trying to do squats with a piece of driftwood on my back when I can’t even go grocery shopping?”

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