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The Privilege of Being Sick

April 22, 2019

I’m not proud to say that it took getting sick and losing some of my privilege for me to grasp how fortunate I was as a healthy person. But it is one of the few good things that has come from my poor health.

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There Ain’t No Party Like a Pity Party

March 17, 2019

What is a pity party, anyway? Well, let me tell you . . . Have you ever had something go wrong and then it snowballed into a million other things that went wrong? If so, you probably know what I’m feeling right now. And therefore you probably don’t need to ask what is a pity […]

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My Most Embarrassing Moment: The Baseball Cup Protector

February 11, 2019

I just stood there like nothing was wrong, hoping no one would notice. But EVERYONE noticed. Every player on the field was staring at me, and although I’ve since blocked out their laughter, I’m sure they were laughing at me. How could you not laugh at something like that?

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New Year, Same Cliché

January 1, 2019

I hate New Year’s resolutions. Why? I don’t know, I get why people make them, and even more so why people abandon them, but has anyone ever actually followed through with a New Year’s resolution? I imagine someone has — some poor, neurotic soul who is actually a robot, and not at all human. Even […]

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How to Understand a Chronic Disease Definition And Name

December 10, 2018

Coming up with a chronic disease definition isNaming the disease after a scientist, or doctor, or even a damn town (as was done for Lyme disease) would be better than calling it chronic fatigue syndrome.

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The Time I Bought a $2,000 Left Handed Coffee Mug

November 24, 2018

It was a bit demoralizing to inflict such a price on my body for a tiny bit of normalcy — a few minutes of conversation. But there is something truly magical about making a plan, carrying it out, and the outcome proving to be very close to how you envisioned it.

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Weight Weight … Don’t Tell me … I’m Fat?

October 21, 2018

I used to love my body. I still love my body. I love the amazing things it can do despite being plagued by illness. I just don’t love the way it looks. But that’s okay with me.

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Disability Rights: Why Voting Matters to Disabled People

October 10, 2018

With the midterm elections less than a month away, I want to encourage everyone to vote, regardless of your political affiliations. At the very least it’s the best way to ensure bills, like HR 620 or another bill that impacts your life, are handled properly.

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The Aftermath of The Afflicted TV Series

September 7, 2018

I shudder to think about someone else with ME/CFS or Lyme being portrayed worse than me and, in turn, being used to marginalize a group of sick people. That’s just not right.

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Netflix and Hill: The True Story Behind “Afflicted”

August 20, 2018

You can’t dupe a person’s family into saying he’s a hypochondriac and expect him to just be happy that the film is “raising awareness.”

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