With the midterm elections less than a month away, I want to encourage everyone to vote, regardless of your political affiliations. At the very least it's the best way to ensure bills, like HR 620 or another bill that impacts your life, are handled properly.
I shudder to think about someone else with ME/CFS or Lyme being portrayed worse than me and, in turn, being used to marginalize a group of sick people. That's just not right.
You can’t dupe a person’s family into saying he’s a hypochondriac and expect him to just be happy that the film is “raising awareness.”
I feel like I should be thankful for every moment that I'm not too miserable to concentrate on my own thoughts. And I am! I'm incredibly grateful, but that mindfulness is hard to sustain when things don't get better.
A few years ago, when I was still on my feet walking the streets, I saw someone stop in the middle of the road and take a selfie. I remember giving a sardonic smile, shaking my head, and waiting for the sound of tires screeching on asphalt. This, of course, was before stopping traffic to... Continue Reading →
One evening a couple weeks ago I woke up from a nap and groggily checked my phone, then my email. Sitting in my inbox was a message from Daniel Jones, editor of the Modern Love column at The New York Times. Even if you haven't heard his name, it's likely you've read, or perhaps even... Continue Reading →
I realized, "Why the hell am I trying to do squats with a piece of driftwood on my back when I can't even go grocery shopping?"
I eventually snap out of it and remember: Oh hey, there's another person here, someone helping me and we're supposed to be working together. But I don't want to work together, not on things I've done alone my entire life ...
I can't remember the last time I saw Kaylie. We went to school together, so it was probably some time after we graduated from high school in 2007. Consequently, our class recently had its 10-year reunion. I couldn't go because I have Lyme disease and ME/CFS, which makes it impossible for me to get around... Continue Reading →