Netflix and Hill: The True Story Behind “Afflicted”
You can’t dupe a person’s family into saying he’s a hypochondriac and expect him to just be happy that the film is “raising awareness.”
lyme
Going Antiviral: My Antiviral Medication List
I feel like I should be thankful for every moment that I’m not too miserable to concentrate on my own thoughts. And I am! I’m incredibly grateful, but that mindfulness is hard to sustain when things don’t get better.
Don’t Do It For The Gram
A few years ago, when I was still on my feet walking the streets, I saw someone stop in the middle of the road and take a selfie. I remember giving a sardonic smile, shaking my head, and waiting for the sound of tires screeching on asphalt. Clearly, I wouldn’t have done anything “for the …
My Modern Love Essay is in The New York Times
One evening a couple weeks ago I woke up from a nap and groggily checked my phone, then my email. Sitting in my inbox was a response to one of my Modern Love submissions, a message from Daniel Jones, editor of the Modern Love column at The New York Times. Even if you haven’t heard his …
This is Why Exercise Can’t Cure Illness
I realized, “Why the hell am I trying to do squats with a piece of driftwood on my back when I can’t even go grocery shopping?”
The Caregiving Requirements of Being Bedridden
I eventually snap out of it and remember: Oh hey, there’s another person here, someone helping me and we’re supposed to be working together. But I don’t want to work together, not on things I’ve done alone my entire life …
Friends with Lyme: Kaylie
I can’t remember the last time I saw Kaylie. We went to school together, so it was probably some time after we graduated from high school in 2007. Consequently, our class recently had its 10-year reunion. I couldn’t go because I have Lyme disease and ME/CFS, which makes it impossible for me to get around …