Life Without an IV
It’s hard to say exactly why I’ve been able to sustain my recovery without IV fluids.
Tag: health
Advocacy and Acrimony in the ME/CFS Community
I’ve never disagreed with anyone on the fact that our illness needs more research funding and more treatments. These basic needs will never be disagreed upon within the community, and it is especially important to remind ourselves of that when things get heated.
A Little Energy DOESN’T Go a Long Way
If there’s one thing that I’ve struggled with the most while I’ve been sick, it’s finding a balance between doing things I enjoy and doing things that don’t make me sicker. It’s especially hard when almost everything I do either steals my energy, fills my muscles with pain, or makes me feel like I’m going …
How to Ruin a Mattress . . . And Other Things I’m Good At
I’ve been on a hunt for the best mattress for a disabled person, like me, ever since I ruined my last several mattresses. How exactly does one ruin a mattress? The obvious guess might be to have lots and lots and LOTS of sex. And as fun as that would be, I’m not convinced it …
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All Work and No Quarantine
It’s hard for me to fault people like this, people who try to go about their jobs and daily lives, unfazed by the reality of a deadly virus. It’s hard for me to fault them because, once upon a time, I did the same thing.
Fear and Social Distancing in Quarantine
I hope everyone remembers what it was like, how it felt to live in this strange alternative universe of fear and social distancing. I hope everyone remembers it because some people will have to keep living it.
Talking Without Speaking and Dreams of Old Friends
The need to speak my mind, and the heartache of not being able to, has only made the moment more palpable, more intense and full of emotion. But no amount of emotion is going to change my circumstances. No matter how hard I try, I can’t speak the words I want to say.
My New Memoir Title: When Force Meets Fate
Last week I officially kicked off the campaign to publish my memoir, When Force Meets Fate. Originally I planned to call it Not Like The Whiskey, but I decided that was too obscure and not many people would get the significance. So I changed the memoir title and now we have When Force Meets Fate. It …
In an Emergency, Disabled People Are on Their Own
Each fall, for the last few years, I’ve lived on edge, hoping a major wildfire doesn’t strike where I live and force me to choose between the lesser of two evils–stay and risk dying in my home or evacuate and risk making myself sicker and getting injured.
What It’s Like Working With a Chronic Illness
I regret that it took a life-changing illness, and losing some of my privilege, for me to truly empathize with the struggles of less fortunate people. I wish I had come to this realization sooner, when I had more health and energy to help other people.