I shudder to think about someone else with ME/CFS or Lyme being portrayed worse than me and, in turn, being used to marginalize a group of sick people. That's just not right.
You can’t dupe a person’s family into saying he’s a hypochondriac and expect him to just be happy that the film is “raising awareness.”
A few years ago, when I was still on my feet walking the streets, I saw someone stop in the middle of the road and take a selfie. I remember giving a sardonic smile, shaking my head, and waiting for the sound of tires screeching on asphalt. This, of course, was before stopping traffic to... Continue Reading →
I realized, "Why the hell am I trying to do squats with a piece of driftwood on my back when I can't even go grocery shopping?"
I am always looking to compare treatments with fellow chronic illness sufferers. Unfortunately we have to be our own lab rats because so much is unknown about our illnesses. Below is a list of some of the medications I've tried over the years. I was thinking about adding supplements, but I'd need an entire blog... Continue Reading →
I knew early on in my illness that it could last a long time -- years, maybe decades. I hoped it wouldn't, of course, but as I often do, I feared the worst. So, when faced with the daunting thought of being indefinitely sick, I made a deal with myself: If I didn't get better... Continue Reading →
... going a full day without sleep on top of having a chronic illness that already makes me feel drunk and exhausted is quite a struggle, or if we're talking about the drunken/hungover equivalent, then, well, it's quite the party. And by party I mean the BDSM kind with floggers, chains, and whips, which despite my jokes, I do not enjoy.
Do you know that song The Sound of Silence? I’m sure you do, maybe it’s even your favorite song. I’ll be honest, though, I’m not much of a Simon & Garfunkel fan. Somehow, however, the song has been stuck in my head lately, probably because the lyrics are so relevant to my current situation, albeit... Continue Reading →