My Book is Officially Published!
My book can’t mean everything to everybody, but it can mean everything to me. And now it does.
My book can’t mean everything to everybody, but it can mean everything to me. And now it does.
It’s been a rough year. I think we can all agree on that, so I thought I’d share some good news—my health has been improving lately. The other day I got out of bed and stood up three times in the span of a few hours, the most I’ve done in my walking rehabilitation in …
It’s hard not to be consumed by bitterness and anger. In the macro sense, it’s hard for me because, well, my life hasn’t turned out the way I imagined it would. I’m 32 and haven’t walked in more than five years, I’ve been through intense physical and emotional trauma, and because of my illness, I …
For me, it all comes down to the simple truth that if I don’t take unsolicited advice seriously, I won’t get upset that random strangers with no credentials or medical training think they know what’s best for my health.
It’s hard to say exactly why I’ve been able to sustain my recovery without IV fluids.
I’ve never disagreed with anyone on the fact that our illness needs more research funding and more treatments. These basic needs will never be disagreed upon within the community, and it is especially important to remind ourselves of that when things get heated.
If there’s one thing that I’ve struggled with the most while I’ve been sick, it’s finding a balance between doing things I enjoy and doing things that don’t make me sicker. It’s especially hard when almost everything I do either steals my energy, fills my muscles with pain, or makes me feel like I’m going …
I’ve been on a hunt for the best mattress for a disabled person, like me, ever since I ruined my last several mattresses. How exactly does one ruin a mattress? The obvious guess might be to have lots and lots and LOTS of sex. And as fun as that would be, I’m not convinced it …
How to Ruin a Mattress . . . And Other Things I’m Good At Read More »
It’s hard to be hopeful that a cure for ME/CFS will be found when the entire world is looking for a cure for a different illness.
It’s hard for me to fault people like this, people who try to go about their jobs and daily lives, unfazed by the reality of a deadly virus. It’s hard for me to fault them because, once upon a time, I did the same thing.