Life Without an IV
It’s hard to say exactly why I’ve been able to sustain my recovery without IV fluids.
coronavirus
A Little Energy DOESN’T Go a Long Way
If there’s one thing that I’ve struggled with the most while I’ve been sick, it’s finding a balance between doing things I enjoy and doing things that don’t make me sicker. It’s especially hard when almost everything I do either steals my energy, fills my muscles with pain, or makes me feel like I’m going …
Advocacy Coalition: A Day Late and a Hundred Million Dollars Short
It’s hard to be hopeful that a cure for ME/CFS will be found when the entire world is looking for a cure for a different illness.
All Work and No Quarantine
It’s hard for me to fault people like this, people who try to go about their jobs and daily lives, unfazed by the reality of a deadly virus. It’s hard for me to fault them because, once upon a time, I did the same thing.
Fear and Social Distancing in Quarantine
I hope everyone remembers what it was like, how it felt to live in this strange alternative universe of fear and social distancing. I hope everyone remembers it because some people will have to keep living it.