It’s hard to be hopeful that a cure for ME/CFS will be found when the entire world is looking for a cure for a different illness.
It's hard for me to fault people like this, people who try to go about their jobs and daily lives, unfazed by the reality of a deadly virus. It's hard for me to fault them because, once upon a time, I did the same thing.
I hope everyone remembers what it was like, how it felt to live in this strange alternative universe of fear and social distancing. I hope everyone remembers it because some people will have to keep living it.
My first job was working the front desk at a gym for minimum wage. I had to scan member ID cards, re-rack weights, and clean the entire gym — wiping up people’s saliva from the sinks and their sweat off the treadmills, sanitizing the toilets and showers, and picking up the garbage they left behind. [...]
The need to speak my mind, and the heartache of not being able to, has only made the moment more palpable, more intense and full of emotion. But no amount of emotion is going to change my circumstances. No matter how hard I try, I can’t speak the words I want to say.