I've never disagreed with anyone on the fact that our illness needs more research funding and more treatments. These basic needs will never be disagreed upon within the community, and it is especially important to remind ourselves of that when things get heated.
If there's one thing that I've struggled with the most while I've been sick, it's finding a balance between doing things I enjoy and doing things that don't make me sicker. It's especially hard when almost everything I do either steals my energy, fills my muscles with pain, or makes me feel like I'm going [...]
How exactly does one ruin a mattress? The obvious guess might be to have lots and lots and LOTS of sex. And as fun as that would be, I'm not convinced it would actually ruin a mattress. Maybe just make it, I don't know, more springy? Of course you could just jump up and down [...]
It’s hard to be hopeful that a cure for ME/CFS will be found when the entire world is looking for a cure for a different illness.
It's hard for me to fault people like this, people who try to go about their jobs and daily lives, unfazed by the reality of a deadly virus. It's hard for me to fault them because, once upon a time, I did the same thing.