Telling myself to not take my health for granted has always been a mental game I've played, an affirmation, perhaps even a mantra that I've repeated to make myself feel better about the fact that scary stuff can happen to anybody, at any time.
I could see all kinds of things that I had missed when I was stuck in my bed. I could feel the breeze swirling around me; I could see hummingbirds buzzing around a tree branch above the roof. I didn't realize it until later, but it was the first time I had been outside in two years.
One of the most memorable events in Serena’s life after she entered adulthood began by sliding down a set of stairs on a mattress. Children do this for fun, sure, but Serena was 18 — an adult — and by no means was she having fun. She was trying to see a doctor.
*Please subscribe to my blog below* I've never been one to protest, well, unless you count not shopping at a certain large retail store whose name rhymes with Falmart. So what I'm about to ask of anyone reading this might seem a bit hypocritical. But that's okay, I'm gonna ask anyway. Those of you who... Continue Reading →
*Please subscribe to my blog below* I was completely naked for the better part of an entire year. I wore no clothes. None. Now, before you file this post away on your "too much information" (TMI) blacklist, first let me promise to keep the intimate stuff to a minimum. That being said, some stuff may... Continue Reading →
In October 2015, after nearly a year of being bedridden and receiving no medical treatment, I finally got to see a doctor. I shouldn't say I saw him, because well, not only were my eyes completely covered during the appointment, we weren't even in the same room. In fact, the appointment consisted of the doctor calling... Continue Reading →
The room is completely dark, even after I take off the washcloth and tanning goggles shielding my eyes from encroaching light. When Ryan Prior interviewed me for Forgotten Plague, the documentary he co-directed about MECFS, the body I had worked so hard to obtain was slowly wasting away, but little did I know at the time... Continue Reading →
*Please subscribe to my blog below* What's your favorite food? Okay. When was the last time you ate it? Briefly, if you will, imagine going 18 months without that food. Not exactly a monumental feat, but it is certainly less than ideal. In other words, you might get pretty grumpy, but you would survive. Okay,... Continue Reading →