"When your own life is threatened, your sense of empathy is blunted by a terrible, selfish hunger for survival." - Yann Martel (Life of Pi) Lately I've been reflecting on the ups and downs of having a chronic illness -- in my case, two illnesses, myalgic encephalomyelitis (chronic fatigue syndrome) and Lyme disease. Mostly I've... Continue Reading →
I made a wish, and then, like a spooky omen, a bat flew into my room. That obviously wasn't my wish, but it was definitely a memorable experience.
It's been two weeks since my last blog post. Did you miss me? I sure missed you! I really did. I realize you may not have noticed my absence, which is fine but if you didn't, then: bye! Just joking, I'm sure most of you didn't notice I took a break, but writing this post... Continue Reading →
While we are all faced with a finite number of days left to live, most of us have no idea exactly how many.
This essay was originally published by TalkPoverty and republished by CommonDreams. I haven't been able to get out of bed on my own in nearly two years—and I’m only 28 years old. For more than a year I was unable to speak, sit up, or eat solid food. In June 2015, first responders wheeled me... Continue Reading →
Progressing toward standing and getting out of bed again has been one of the hardest things I've ever done -- harder than deadlifting three times my body weight.
*Disclaimer: the following is a post featuring my opinions and research I've done. I'm not a medical professional or any kind of professional. Well, I'm really good at blankly staring off in the distance. Does that count? I recently came across an AP news report on IV "bars," and how seemingly healthy people use them... Continue Reading →
What ensued over the following weeks was both further regression of my speaking abilities and a frantic search for methods of nonverbal communication to ensure my needs were met.
Lately, I've been trying to sit-up without help at least once a day. Some days it's just not possible, but on good days I've been able to pivot my body and hang my legs off the bed. Because it is on risers, however, my feet cannot touch the ground and I have to use the... Continue Reading →