I knew early on in my illness that it could last a long time -- years, maybe decades. I hoped it wouldn't, of course, but as I often do, I feared the worst. So, when faced with the daunting thought of being indefinitely sick, I made a deal with myself: If I didn't get better... Continue Reading →
One of the most memorable events in Serena’s life after she entered adulthood began by sliding down a set of stairs on a mattress. Children do this for fun, sure, but Serena was 18 — an adult — and by no means was she having fun. She was trying to see a doctor.
She is short and slender, yet I have seen both large men and imposing women crumble under her tenacity.
The truth is I don’t want to remember that feeling because I know the only way I can truly remember it is if I become that sick again.
"When your own life is threatened, your sense of empathy is blunted by a terrible, selfish hunger for survival." - Yann Martel (Life of Pi) Lately I've been reflecting on the ups and downs of having a chronic illness -- in my case, two illnesses, myalgic encephalomyelitis (chronic fatigue syndrome) and Lyme disease. Mostly I've... Continue Reading →
I made a wish, and then, like a spooky omen, a bat flew into my room. That obviously wasn't my wish, but it was definitely a memorable experience.
It's been two weeks since my last blog post. Did you miss me? I sure missed you! I really did. I realize you may not have noticed my absence, which is fine but if you didn't, then: bye! Just joking, I'm sure most of you didn't notice I took a break, but writing this post... Continue Reading →
While we are all faced with a finite number of days left to live, most of us have no idea exactly how many.
This essay was originally published by TalkPoverty and republished by CommonDreams. I haven't been able to get out of bed on my own in nearly two years—and I’m only 28 years old. For more than a year I was unable to speak, sit up, or eat solid food. In June 2015, first responders wheeled me... Continue Reading →