Almost Walking

Almost Walking

It's been a rough year. I think we can all agree on that, so I thought I’d share some good news—my health has been improving lately. The other day I got out of bed and stood up three times in the span of a few hours, the most I’ve done in the last six years. [...]

A Little Energy DOESN’T Go a Long Way

A Little Energy DOESN’T Go a Long Way

If there's one thing that I've struggled with the most while I've been sick, it's finding a balance between doing things I enjoy and doing things that don't make me sicker. It's especially hard when almost everything I do either steals my energy, fills my muscles with pain, or makes me feel like I'm going [...]

There Ain’t No Party Like a Pity Party

There Ain’t No Party Like a Pity Party

Have you ever had something go wrong and then it snowballed into a million other things that went wrong? If so, you probably know what I'm feeling right now. You may even know a variation of the anger I feel and how it has led me to do and say things that have probably made [...]

The S-Word

The S-Word

Warning: This post is about depression and suicide. I knew early on in my illness that it could last a long time -- years, maybe decades. I hoped it wouldn't, of course, but as I often do, I feared the worst. So, when faced with the daunting thought of being indefinitely sick, I made a [...]