I feel like I should be thankful for every moment that I'm not too miserable to concentrate on my own thoughts. And I am! I'm incredibly grateful, but that mindfulness is hard to sustain when things don't get better.
The truth is I don’t want to remember that feeling because I know the only way I can truly remember it is if I become that sick again.
*Please subscribe to my blog below* I've never been one to protest, well, unless you count not shopping at a certain large retail store whose name rhymes with Falmart. So what I'm about to ask of anyone reading this might seem a bit hypocritical. But that's okay, I'm gonna ask anyway. Those of you who... Continue Reading →
*Please subscribe to my blog below* I was completely naked for the better part of an entire year. I wore no clothes. None. Now, before you file this post away on your "too much information" (TMI) blacklist, first let me promise to keep the intimate stuff to a minimum. That being said, some stuff may... Continue Reading →
In October 2015, after nearly a year of being bedridden and receiving no medical treatment, I finally got to see a doctor. I shouldn't say I saw him, because well, not only were my eyes completely covered during the appointment, we weren't even in the same room. In fact, the appointment consisted of the doctor calling... Continue Reading →
The room is completely dark, even after I take off the washcloth and tanning goggles shielding my eyes from encroaching light. When Ryan Prior interviewed me for Forgotten Plague, the documentary he co-directed about MECFS, the body I had worked so hard to obtain was slowly wasting away, but little did I know at the time... Continue Reading →
*Please subscribe to my blog below* What's your favorite food? Okay. When was the last time you ate it? Briefly, if you will, imagine going 18 months without that food. Not exactly a monumental feat, but it is certainly less than ideal. In other words, you might get pretty grumpy, but you would survive. Okay,... Continue Reading →