I could see all kinds of things that I had missed when I was stuck in my bed. I could feel the breeze swirling around me; I could see hummingbirds buzzing around a tree branch above the roof. I didn't realize it until later, but it was the first time I had been outside in two years.
I'm not proud to say that it took getting sick and losing some of my privilege for me to grasp how fortunate I was as a healthy person. But it is one of the few good things that has come from my poor health.
Have you ever had something go wrong and then it snowballed into a million other things that went wrong? If so, you probably know what I'm feeling right now. You may even know a variation of the anger I feel and how it has led me to do and say things that have probably made... Continue Reading →
I just stood there like nothing was wrong, hoping no one would notice. But EVERYONE noticed. Every player on the field was staring at me, and although I've since blocked out their laughter, I'm sure they were laughing at me. How could you not laugh at something like that?
Naming the disease after a scientist, or doctor, or even a damn town (as was done for Lyme disease) would be better than calling it chronic fatigue syndrome.
With the midterm elections less than a month away, I want to encourage everyone to vote, regardless of your political affiliations. At the very least it's the best way to ensure bills, like HR 620 or another bill that impacts your life, are handled properly.
I feel like I should be thankful for every moment that I'm not too miserable to concentrate on my own thoughts. And I am! I'm incredibly grateful, but that mindfulness is hard to sustain when things don't get better.
I eventually snap out of it and remember: Oh hey, there's another person here, someone helping me and we're supposed to be working together. But I don't want to work together, not on things I've done alone my entire life ...
I am always looking to compare treatments with fellow chronic illness sufferers. Unfortunately we have to be our own lab rats because so much is unknown about our illnesses. Below is a list of some of the medications I've tried over the years. I was thinking about adding supplements, but I'd need an entire blog... Continue Reading →