I Went Outside. Sort of.

I could see all kinds of things that I had missed when I was stuck in my bed. I could feel the breeze swirling around me; I could see hummingbirds buzzing around a tree branch above the roof. I didn't realize it until later, but it was the first time I had been outside in two years.

My Most Embarrassing Moment

I just stood there like nothing was wrong, hoping no one would notice. But EVERYONE noticed. Every player on the field was staring at me, and although I've since blocked out their laughter, I'm sure they were laughing at me. How could you not laugh at something like that?

Going Anti-Viral

I feel like I should be thankful for every moment that I'm not too miserable to concentrate on my own thoughts. And I am! I'm incredibly grateful, but that mindfulness is hard to sustain when things don't get better.

My Way

I eventually snap out of it and remember: Oh hey, there's another person here, someone helping me and we're supposed to be working together. But I don't want to work together, not on things I've done alone my entire life ...

What Are You On?

I am always looking to compare treatments with fellow chronic illness sufferers. Unfortunately we have to be our own lab rats because so much is unknown about our illnesses. Below is a list of some of the medications I've tried over the years. I was thinking about adding supplements, but I'd need an entire blog... Continue Reading →

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