One of the most memorable events in Serena’s life after she entered adulthood began by sliding down a set of stairs on a mattress. Children do this for fun, sure, but Serena was 18 — an adult — and by no means was she having fun. She was trying to see a doctor.
She is short and slender, yet I have seen both large men and imposing women crumble under her tenacity.
"When your own life is threatened, your sense of empathy is blunted by a terrible, selfish hunger for survival." - Yann Martel (Life of Pi) Lately I've been reflecting on the ups and downs of having a chronic illness -- in my case, two illnesses, myalgic encephalomyelitis (chronic fatigue syndrome) and Lyme disease. Mostly I've... Continue Reading →
Now that there is finally some scientific answers coming our way, we might actually have the luxury of not using each other as guinea pigs. But we may also be faced with being separated by the very answers we have sought for such an incredibly long time. And, regardless of its impact on our relationships, we may be more different than we originally thought.
I made a wish, and then, like a spooky omen, a bat flew into my room. That obviously wasn't my wish, but it was definitely a memorable experience.
It's been two weeks since my last blog post. Did you miss me? I sure missed you! I really did. I realize you may not have noticed my absence, which is fine but if you didn't, then: bye! Just joking, I'm sure most of you didn't notice I took a break, but writing this post... Continue Reading →
Don't get me wrong, I think there is something very wrong when I won't drink from a straw that has been touched on either end by someone's hands, but I also think there is something very wrong when I end up bedbound and too weak to chew or lift a fork after getting the flu.
When I had to write about things like porta-potties and the best nightclubs in Tulsa, Oklahoma (yes, I actually wrote about both of those things) I only made about $20 an essay. The work I do now is much more infrequent, but it's way more rewarding.
This essay was originally published by TalkPoverty and republished by CommonDreams. I haven't been able to get out of bed on my own in nearly two years—and I’m only 28 years old. For more than a year I was unable to speak, sit up, or eat solid food. In June 2015, first responders wheeled me... Continue Reading →