I am always looking to compare treatments with fellow chronic illness sufferers. Unfortunately we have to be our own lab rats because so much is unknown about our illnesses. Below is a list of some of the medications I've tried over the years. I was thinking about adding supplements, but I'd need an entire blog... Continue Reading →
I knew early on in my illness that it could last a long time -- years, maybe decades. I hoped it wouldn't, of course, but as I often do, I feared the worst. So, when faced with the daunting thought of being indefinitely sick, I made a deal with myself: If I didn't get better... Continue Reading →
... going a full day without sleep on top of having a chronic illness that already makes me feel drunk and exhausted is quite a struggle, or if we're talking about the drunken/hungover equivalent, then, well, it's quite the party. And by party I mean the BDSM kind with floggers, chains, and whips, which despite my jokes, I do not enjoy.
The entire time I've been sick I've wanted to be that person -- the person who brings tears of joy to dry eyes, the person who makes people believe in happy endings and the body's astonishing ability to heal itself. I wanted to be that person so bad, perhaps even more than I wanted to merely do things that healthy people do. And to a certain extent I have become that person, or rather, I was that person and now I'm having a bit of an identity crisis. What happens when you are known for battling illness, then stop recovering?
One of the most memorable events in Serena’s life after she entered adulthood began by sliding down a set of stairs on a mattress. Children do this for fun, sure, but Serena was 18 — an adult — and by no means was she having fun. She was trying to see a doctor.
She is short and slender, yet I have seen both large men and imposing women crumble under her tenacity.
If a doctor drives an Audi and pays $4,000 a month for a big house while a patient can't afford a single appointment with that doctor because he/she charges $500 and doesn't accept health insurance, then sorry (I'm not sorry), he/she should have his/her medical license taken away.
"When your own life is threatened, your sense of empathy is blunted by a terrible, selfish hunger for survival." - Yann Martel (Life of Pi) Lately I've been reflecting on the ups and downs of having a chronic illness -- in my case, two illnesses, myalgic encephalomyelitis (chronic fatigue syndrome) and Lyme disease. Mostly I've... Continue Reading →
Now that there is finally some scientific answers coming our way, we might actually have the luxury of not using each other as guinea pigs. But we may also be faced with being separated by the very answers we have sought for such an incredibly long time. And, regardless of its impact on our relationships, we may be more different than we originally thought.