Naming the disease after a scientist, or doctor, or even a damn town (as was done for Lyme disease) would be better than calling it chronic fatigue syndrome.
It was a bit demoralizing to inflict such a price on my body for a tiny bit of normalcy -- a few minutes of conversation. But there is something truly magical about making a plan, carrying it out, and the outcome proving to be very close to how you envisioned it.
I used to love my body. I still love my body. I love the amazing things it can do despite being plagued by illness. I just don't love the way it looks. But that’s okay with me.
With the midterm elections less than a month away, I want to encourage everyone to vote, regardless of your political affiliations. At the very least it's the best way to ensure bills, like HR 620 or another bill that impacts your life, are handled properly.
I shudder to think about someone else with ME/CFS or Lyme being portrayed worse than me and, in turn, being used to marginalize a group of sick people. That's just not right.
One evening a couple weeks ago I woke up from a nap and groggily checked my phone, then my email. Sitting in my inbox was a message from Daniel Jones, editor of the Modern Love column at The New York Times. Even if you haven't heard his name, it's likely you've read, or perhaps even... Continue Reading →
I realized, "Why the hell am I trying to do squats with a piece of driftwood on my back when I can't even go grocery shopping?"
I eventually snap out of it and remember: Oh hey, there's another person here, someone helping me and we're supposed to be working together. But I don't want to work together, not on things I've done alone my entire life ...
I can't remember the last time I saw Kaylie. We went to school together, so it was probably some time after we graduated from high school in 2007. Consequently, our class recently had its 10-year reunion. I couldn't go because I have Lyme disease and ME/CFS, which makes it impossible for me to get around... Continue Reading →