It’s eight in the morning and I haven’t slept yet. In one corner of my room, I can hear the low rattle of my desktop mini fridge. In another corner, I can see the piercing green light from my air purifier. These, among other things, do not help me sleep. After more than a full …
The last few months have been rough. If you follow me on social media, then you know that I have been going through a brutal intake interview for In-Home Supportive Services, which provides me with caregiving hours. You may also know that the intake interview did not go well. I’m in the process of appealing …
In the more than a decade that I’ve been sick, I’ve experienced just about every level of my illness. At various times, I’ve been near death. At other times, I’ve been well enough to function almost like a healthy person. I’ve also been stuck in the middle, as I am now, wondering what will happen …
There was a brief moment, as I lay in the back of my mom’s van, when it seemed like moving to a new house was going to be easy. Or if not easy, then it seemed like the move might at least be manageable. But soon after, things became increasingly unmanageable. The process of moving …
It all starts with a Lyme bullseye rash. Well, not always. In my case, and many others, Lyme disease began more mysteriously. For me, there was no Lyme bullseye rash or even a detectable tick bite. (The last tick bite I had was ten years before I was diagnosed.) It was almost as if my …
A lot of people ask me about the products and aids that I currently use (or have used in the past) to improve my quality of life. And while I’m sure there are at least a few disability products catalogs out there, I thought I would use this post to cover some of the products …
9 Disability Products and Aids That Have Helped Me Read More »
For years, I’ve been wanting to update my chronic illness and disability website. Partly because I’ve always envied people with websites that have fancy graphics and animations, and partly because, well, you and all the other lovely people who read my blog deserve a more modern experience. Until recently, I thought I could create (and …
My book can’t mean everything to everybody, but it can mean everything to me. And now it does.
It’s been a rough year. I think we can all agree on that, so I thought I’d share some good news—my health has been improving lately. The other day I got out of bed and stood up three times in the span of a few hours, the most I’ve done in my walking rehabilitation in …
It’s hard not to be consumed by bitterness and anger. In the macro sense, it’s hard for me because, well, my life hasn’t turned out the way I imagined it would. I’m 32 and haven’t walked in more than five years, I’ve been through intense physical and emotional trauma, and because of my illness, I …