I am always looking to compare treatments with fellow chronic illness sufferers. Unfortunately we have to be our own lab rats because so much is unknown about our illnesses. Below is a list of some of the medications I've tried over the years. I was thinking about adding supplements, but I'd need an entire blog... Continue Reading →
I knew early on in my illness that it could last a long time -- years, maybe decades. I hoped it wouldn't, of course, but as I often do, I feared the worst. So, when faced with the daunting thought of being indefinitely sick, I made a deal with myself: If I didn't get better... Continue Reading →
... going a full day without sleep on top of having a chronic illness that already makes me feel drunk and exhausted is quite a struggle, or if we're talking about the drunken/hungover equivalent, then, well, it's quite the party. And by party I mean the BDSM kind with floggers, chains, and whips, which despite my jokes, I do not enjoy.
Do you know that song The Sound of Silence? I’m sure you do, maybe it’s even your favorite song. I’ll be honest, though, I’m not much of a Simon & Garfunkel fan. Somehow, however, the song has been stuck in my head lately, probably because the lyrics are so relevant to my current situation, albeit... Continue Reading →
She is short and slender, yet I have seen both large men and imposing women crumble under her tenacity.
The truth is I don’t want to remember that feeling because I know the only way I can truly remember it is if I become that sick again.
A version of this essay was first published by Men’s Journal in 2016. After kissing me for a few minutes, Laura, my ex-girlfriend, pulls her top down and lets me feel and kiss her breasts. I am so excited and nervous I almost enter an apoplectic state. It is a moment of rapid heartbeats and... Continue Reading →
If a doctor drives an Audi and pays $4,000 a month for a big house while a patient can't afford a single appointment with that doctor because he/she charges $500 and doesn't accept health insurance, then sorry (I'm not sorry), he/she should have his/her medical license taken away.
"When your own life is threatened, your sense of empathy is blunted by a terrible, selfish hunger for survival." - Yann Martel (Life of Pi) Lately I've been reflecting on the ups and downs of having a chronic illness -- in my case, two illnesses, myalgic encephalomyelitis (chronic fatigue syndrome) and Lyme disease. Mostly I've... Continue Reading →