Naming the disease after a scientist, or doctor, or even a damn town (as was done for Lyme disease) would be better than calling it chronic fatigue syndrome.
It was a bit demoralizing to inflict such a price on my body for a tiny bit of normalcy -- a few minutes of conversation. But there is something truly magical about making a plan, carrying it out, and the outcome proving to be very close to how you envisioned it.
With the midterm elections less than a month away, I want to encourage everyone to vote, regardless of your political affiliations. At the very least it's the best way to ensure bills, like HR 620 or another bill that impacts your life, are handled properly.
I shudder to think about someone else with ME/CFS or Lyme being portrayed worse than me and, in turn, being used to marginalize a group of sick people. That's just not right.
You can’t dupe a person’s family into saying he’s a hypochondriac and expect him to just be happy that the film is “raising awareness.”
A few years ago, when I was still on my feet walking the streets, I saw someone stop in the middle of the road and take a selfie. I remember giving a sardonic smile, shaking my head, and waiting for the sound of tires screeching on asphalt. This, of course, was before stopping traffic to... Continue Reading →
I realized, "Why the hell am I trying to do squats with a piece of driftwood on my back when I can't even go grocery shopping?"
I am always looking to compare treatments with fellow chronic illness sufferers. Unfortunately we have to be our own lab rats because so much is unknown about our illnesses. Below is a list of some of the medications I've tried over the years. I was thinking about adding supplements, but I'd need an entire blog... Continue Reading →
I knew early on in my illness that it could last a long time -- years, maybe decades. I hoped it wouldn't, of course, but as I often do, I feared the worst. So, when faced with the daunting thought of being indefinitely sick, I made a deal with myself: If I didn't get better... Continue Reading →