Advocacy and Acrimony in the ME/CFS Community

Advocacy and Acrimony in the ME/CFS Community

I've never disagreed with anyone on the fact that our illness needs more research funding and more treatments. These basic needs will never be disagreed upon within the community, and it is especially important to remind ourselves of that when things get heated.

How to Ruin a Mattress . . . And Other Things I’m Good At

How to Ruin a Mattress . . . And Other Things I’m Good At

How exactly does one ruin a mattress? The obvious guess might be to have lots and lots and LOTS of sex. And as fun as that would be, I'm not convinced it would actually ruin a mattress. Maybe just make it, I don't know, more springy? Of course you could just jump up and down [...]

A Veiled Attack on The Disabled

A Veiled Attack on The Disabled

My first job was working the front desk at a gym for minimum wage. I had to scan member ID cards, re-rack weights, and clean the entire gym — wiping up people’s saliva from the sinks and their sweat off the treadmills, sanitizing the toilets and showers, and picking up the garbage they left behind. [...]

What It’s Like to Work Full-Time and Have a Chronic Illness

What It’s Like to Work Full-Time and Have a Chronic Illness

I regret that it took a life-changing illness, and losing some of my privilege, for me to truly empathize with the struggles of less fortunate people. I wish I had come to this realization sooner, when I had more health and energy to help other people.